News

The European Union has invested heavily in health research. Since the early 2000’s it supported the creation of European Research […]

The rare disease international film festival is the first and only film festival on rare diseases in Europe. It collects […]

On September 16th 2019, a workshop “Rare disease perspectives in Central – Eastern Europe”, twinned to the General Assembly of […]

EMA’s human medicines committee (CHMP) has recommended the authorisation of Palynziq (pegvaliase), a new medicine for patients aged 16 and […]

A new EURORDIS-led article, “Share and protect our health data: an evidence based approach to rare disease patients’ perspectives on […]

New Frontier Research – Health article by Horizon Magazine on a video at nanometre resolution -first time ever-, where scientists […]

The success of European research missions, which aim to stimulate innovation to solve major societal problems, will require a complete […]

A call for application for the preparation of EPTRI feasibility studies has been launched.Feasibility studies are aimed to test the process, the […]

Patients Active in Research and Dialogues for an Improved Generation of Medicines WP1 – Defining stakeholders’ preferences, needs and expectations […]

EJP-RD is a multifaceted program aimed at supporting Rare Disease (RD) research in every possible way. This  include funding of primary research, networking […]