Join us for a groundbreaking 2-day face-to-face event that promises to revolutionize the world of rare disease research! The European Joint Programme on Rare Diseases proudly presents the culminating training workshop in its series of capacity-building programs on biobanking.
The free event will be held on December 13-14, 2023.

Registration Deadline Register here by October 23, 2023.
More information here.

The second stop of the EBW22 will be held as an in-person event in Rome, Italy on October 13^th-14^th at the Auditorium San Paolo, Bambino Gesù Paediatric Hospital. Because of the EBW22 Roadshow format and the purpose to co-design a shared statement in paediatric biobanking, the meeting will be face-to-face and interactive.

The meeting will be kicked off with an overall view of European commitment to paediatric research and healthcare followed by an in-depth exchange on good practices and priorities of various actors to raise awareness and citizen science, facilitate assent and consenting processes, and improve engagement. The first day will conclude with a keynote on innovative genomic approaches to undiagnosed patients and precision medicine in children by Marco Tartaglia and Franco Locatelli. 

The second day will be framed into two sessions of “Interactive training for a community of practices” where small groups will work together in parallel 

• to recognize and map good practice, training, and learning from each other to build a paediatric (research) biobanking community based on shared knowledge and good practices
• to codesign a shared recommendation on paediatric biobanking. 

The detailed program is now available here.

Registration is mandatory and open here; seats are limited to 100 attendees.

For more information: https://www.bbmri-eric.eu/news-events/europe-biobank-week-roadshow-2022-save-the-date-for-the-second-stage/

The second stop of the EBW22 will be held as an in-person event in Rome, Italy from October 13th – 14th at the Auditorium San Paolo, Bambino Gesù Paediatric Hospital.

Paediatric (research) biobanking is a European priority. Accordingly, the critical starting point of the second stop will be an overall view of European commitment to paediatric research and healthcare and an in-depth exchange on good practices and priorities of various actors to raise awareness, facilitate assent and consenting processes, and improve engagement.

The UPDATED programme is now available here.

Registration is mandatory.

For more information: https://www.bbmri-eric.eu/news-events/europe-biobank-week-roadshow-2022-save-the-date-for-the-second-stage/

The training workshop will take place online over two days on June 14th – 15th from 09.00 – 17.00 CET.

The training workshop is organized as a series of lectures presented by experts in the specific topics. The first day of the training will focus on Data Management and Tools. The second day will cover the ELSI aspects biobanking, European privacy regulations (GDPR), ELSI considerations in genetics, and the stainability of biobanks including a discussion on public-private collaborations.

Registration for the workshop is free but mandatory and open to the international research community, clinicians, medical specialists, RD biobank managers, healthcare professionals and RD patient representatives. 

Registration closes on May 29th, and those selected to participate from among the applicants will be informed of their selection on June 2nd.

More information and registration here: https://www.ejprarediseases.org/event/genetic-biobanks-for-rare-disease-research-2/

The fully online event will take place over three days from November 8th – 10th.

The conference programme features a variety of workshops, presentations, and interactive industry sessions and covers themes like regulatory implications, patient engagement, biological quality, paediatric biobanking, biobanking in personalised medicine, novel and advanced IT solutions for biobanking, and so on.

Registration for the Virtual Congress is currently open at this link.

More information here: https://europebiobankweek.eu/