european commission – EJP RD – European Joint Programme on Rare Diseases https://www.ejprarediseases.org Thu, 01 Dec 2022 13:17:35 +0000 en-GB hourly 1 https://wordpress.org/?v=5.9.9 https://www.ejprarediseases.org/wp-content/uploads/2020/11/cropped-index-32x32.png european commission – EJP RD – European Joint Programme on Rare Diseases https://www.ejprarediseases.org 32 32 European Partnership Stakeholder Forum Video Recordings https://www.ejprarediseases.org/european-partnership-stakeholder-forum-video-recordings/?utm_source=rss&utm_medium=rss&utm_campaign=european-partnership-stakeholder-forum-video-recordings Thu, 01 Dec 2022 13:07:12 +0000 https://www.ejprarediseases.org/?p=14334 On 15 and 16 November 2022 the European Commission launched together with ERA-LEARN its first European Partnership Stakeholder Forum. The Forum focused on the review of the first year of partnerships and, in particular, how they can contribute to the twin green and digital transitions, as well as increasing Europe’s resilience.

EJP RD Coordinator Daria Julkowska participated to the Panel discussion/ High-level round-table“How do European Partnerships contribute to EU political priorities”.

You will find the video recordings here: https://www.era-learn.eu/news-events/events/european-partnership-stakeholder-forum-one-year-review-of-european-partnership-initiatives-in-horizon-europe

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EIC funding call for RNA-based therapies and diagnostics for rare genetic diseases https://www.ejprarediseases.org/eic-funding-call-for-rna-based-therapies-and-diagnostics-for-rare-genetic-diseases/?utm_source=rss&utm_medium=rss&utm_campaign=eic-funding-call-for-rna-based-therapies-and-diagnostics-for-rare-genetic-diseases Mon, 21 Feb 2022 17:44:18 +0000 https://www.ejprarediseases.org/?p=11202 The European Commission (EC) has adopted the 2022 work programme of the European Innovation Council (EIC), opening funding opportunities worth over €1.7 billion in 2022 for breakthrough innovators to scale up and create new markets. This includes €60.5 million to tackle three Transition Challenges, notably one on the development of RNA-based therapies and diagnostics for complex or rare genetic diseases.

The EIC Transition 2022 (HORIZON-EIC-2022-TRANSITION-01) call, which has a planned opening date of March 1st, is intended to meet the following specific objectives:

  1. Advance, beyond the state-of-the-art, RNA delivery methods, including robust mRNA formulations, that would enable effective and safe delivery of mRNA into the cells;
  2. Design, develop and preclinical validate of novel miRNAs (miRNA lncRNA, tRNA or siRNA-based) therapies for complex or rare genetic diseases;
  3. Develop and validate novel RNA-based diagnostics and RNA-based predictive biomarkers that would allow for early and more accurate diagnosis and for favourable or non- post-treatment prognosis, respectively.

The starting point in the project should be a preliminary technology or protocol of an RNA-based therapy for complex or rare genetic diseases with unmet medical needs that demonstrates, in a lab or preclinical context, the essential features that underpin the disruptive nature of the innovation. The endpoint in the project should be a completely functional version of the technology suitable for clinical validation, supported by a sound and implementable commercialisation/exploitation strategy.

The funding call has the following deadlines: May 4th and September 28th.

For more information: https://ec.europa.eu/info/funding-tenders/opportunities/portal/screen/opportunities/topic-details/horizon-eic-2022-transitionchallenges-03

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EC Horizon Impact Award 2022 open for applications https://www.ejprarediseases.org/ec-horizon-impact-award-2022-open-for-applications/?utm_source=rss&utm_medium=rss&utm_campaign=ec-horizon-impact-award-2022-open-for-applications Tue, 15 Feb 2022 15:31:41 +0000 https://www.ejprarediseases.org/?p=11162 The European Commission (EC) has launched the 2022 edition of its Horizon Impact Award, a prize dedicated to EU-funded projects whose results have created societal impact across Europe and beyond. Six winners will be chosen, and each will receive €25,000.

The contest is open for applications until March 8th. The winners will be announced at a dedicated award ceremony in Brussels in 2022.

The prize acknowledges and rewards the most influential and impactful project results under Horizon 2020 (2014-2020) and its predecessor, the 7th Framework Programme (FP7, 2007-2013). The prize will highlight concrete achievements that have a demonstrable value for society, and will celebrate the people who made it happen.

IMPORTANT: The contest is open only to FP7 and Horizon 2020 projects that have ended by the close of the contest and that can provide proof of their impact.

For more information: https://ec.europa.eu/info/research-and-innovation/funding/funding-opportunities/prizes/horizon-impact-award_en

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European Research and Innovation Days 2021 report released https://www.ejprarediseases.org/european-research-and-innovation-days-2021-report-released/?utm_source=rss&utm_medium=rss&utm_campaign=european-research-and-innovation-days-2021-report-released Thu, 16 Dec 2021 13:35:22 +0000 https://www.ejprarediseases.org/?p=10466 The recently released report of the 2021 European Research and Innovation Days organised in June 2021 by the European Commission presents the main conclusion from the 21,000 participants and 200 high-level speakers:

The report contains summaries and quotes from the event’s 70 online live sessions and workshops, as well as from over 200 consultations between participants and Commission representatives.

Notable take-ways of the report include:

  • Europe’s collaborative research and innovation at the global scale are key drivers for a greener, healthier and more digital future for all;
  • Europe needs more synergies between policies, programmes and instruments at EU, global, national and local level to remain at the forefront of research and innovation, and to be effective at delivering a sustainable future;
  • Citizens need to continue having the opportunity to add their voice to the conversation about the future of European research and innovation.

The report’s output will feed into the next co-creating steps of European policy-making in research and innovation, followed by co-implementation.

For more information:

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European Commission (EC) opens funding call on development of new effective therapies for rare diseases https://www.ejprarediseases.org/european-commission-ec-opens-funding-call-on-development-of-new-effective-therapies-for-rare-diseases/?utm_source=rss&utm_medium=rss&utm_campaign=european-commission-ec-opens-funding-call-on-development-of-new-effective-therapies-for-rare-diseases Wed, 20 Oct 2021 16:09:06 +0000 https://www.ejprarediseases.org/?p=9470 On October 6th, 2021, the European Commission (EC) opened a new funding call titled “Tackling diseases (Two Stage – 2022) (HORIZON-HLTH-2022-DISEASE-06-two-stage)” in the context of the Horizon Europe Framework Programme on the development of new effective therapies for rare diseases.

Since the EC recommends that proposals try and take stock of the FAIR guidance and other models and strategies developed by the EJP RD and relevant EU-funded projects, the EJP RD has made available multiple services for prospective applicants

The call is currently accepting proposals that meet the following requirements:

  • Aim to develop therapies for rare diseases with no approved therapeutic option, focusing on group(s) of rare diseases with commonalities, such as shared biological features, and should NOT address a single disease only.
  • The therapies to be developed may include a broad family of therapeutic interventions, such as small molecule(s), advanced therapy medicinal products, repurposing of existing medicinal products, including non-pharmacological interventions and/or their combinations, as relevant.
  • To ensure that the needs of people living with a rare disease are adequately addressed, the involvement of patient representatives in all phases of the research and development process is strongly encouraged.
  • Rare infectious diseases and rare cancers are excluded from this topic and will not be considered.

The topic will support proposals covering several different stages in the continuum of the innovation pathway (i.e., translational, preclinical, clinical research, validation in the clinical and/or real-world setting etc.), as relevant.

The funding call has the following deadlines: February 1st, 2022, and September 6th, 2022

For more information:

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