This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity.

The event will be held in Regensburg, Germany, from August 26^th to August 28^th 2022 in a hybrid format, with the goals to enhance understanding of the underlying clinical, molecular and biological characteristics of each syndrome and of genotype-phenotype relationships, to foster ideas and collaborations for next steps in research that may eventually lead to novel disease-modifying therapies, and to unite patient families.

The meeting will be preceded by an international conference on Argonaute proteins and participants of either are invited to attend the other conference.

More information and registration here.

This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the sixth round of funding in September 2021.

The hybrid event (onsite and online Congress) will take place over two days on July 1st – 2nd in Geneva, Switzerland.

The event is targeted towards professionals (physicians, scientists, patient organisations, allied health
professionals), and the programme can be consulted here.

More information and registration here: https://www.hug.ch/en/symposium-taking-cpss-to-next-level

This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the seventh round of funding.

The in-person event will take place over three days on June 20th – 22nd in Groningen, Netherlands. The meeting will be hosted by the centre of expertise for PMS of the UMC Groningen, Netherlands, member of ERN-ITHACA.

The outcomes of the meeting will be:

• a strong collaboration between different European research groups and centres of expertise for Phelan-McDermid syndrome
• insight in the needs of the patient representatives and strengthen their participation in research- a priority list of knowledge gaps that need to be studied
• consensus on the variables to be collected in the European PMS database 

More information here: https://ern-ithaca.eu/events/upcoming-events/european-meeting-on-phelan-mcdermid-syndrome/

This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the second round of funding in September 2020.

The in-person event will take place over two days on June 17th – 18th in Bruges, Belgium.

A BARD-meeting was originally scheduled in July 2020 to be held in the Belgian city of Bruges. Over 100 abstract submissions had been received for the original conference. Unfortunately, the pandemic upset all these plans and the Congress had to be postponed. In this networking conference, selected papers from the abstracts will be presented during the sessions together with invited lectures from the faculty. Others will be able to be presented as electronic on-site and online posters and will be discussed during the meeting and afterwards on the interactive BARD-website.

More information and registration here: http://www.bard-online.com/

This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the first round of funding in March 2020.

The in-person event will take place on June 17th in Munich, Germany from 09.00 – 18.00 CET.

In this networking conference, participants will gain valuable insights into innovative perspectives in both basic and clinical research. The scientific programme draws together experts from around the world to discuss breakthroughs in basic research, advances in clinical practice, novel therapeutic approaches and new insights into stem-cell and cellular therapies. It is thus an ideal forum to share knowledge, connect with professional colleagues and grow your professional networks.

More information and registration here: https://www.was2022.org/

A funded networking event “1st Workshop on Familial Adult Myoclonic Epilepsy (FAME)” is being organised in Naples, Italy on May 27th-28th.

This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the 2nd round of funding in September 2020.

The workshop will aim to put together the involved researchers including clinicians, geneticists, molecular biologists, and pharmacologists to discuss the established knowledge, to introduce ongoing and future projects, and to share ideas and resources.

More information here: https://www.ilae.org/congresses/1st-workshop-on-familial-adult-myoclonic-epilepsy-fame

This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the 1st round of funding in March 2020.

The meeting will again be held in Brussels, Belgium, at the Vrije Universiteit Brussel (VUB) on Saturday 14th and Sunday 15th May.

AKU researchers, academics, and students are invited to submit ideas for presentations and talks to be discussed during the meeting, and we welcome suggestions on those you think may be beneficial to invite to the workshop.

More information are incoming, including an agenda and the potential of paid travel and accommodation, very soon. To express interest, please email ciaran@akusociety.org.

More information here: https://akusociety.org/aku-scientific-conference-may-2022-brussels/ 

This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the third round of funding in December 2020.

The hybrid event will take place over two days from April 29th – 30th in Florence, Italy with an online attendance option.

In this networking conference, in addition to discussing the progress of the treatment guideline on management of AIE developed by a special Task Force, 50 experts from 14 European countries will also discuss the state of the art of AIE, including history, the use of brain imaging, blood and brain fluid biomarkers. Importantly, the networking conference has the additional goal to create further European collaboration: TREAT AIE. The aims of this collaboration are standardization of data, sharing of databases, creating an European framework database, leading to fruitful research collaborations.

Registration for the event is free but mandatory.

More information and registration here: https://www.morecomunicazione.it/archivio-eventi/treat-aie-networking-conference/

This event has received funding support from the EJP RD’s Networking Support Scheme (NSS) funding opportunity as part of the sixth round of funding in September 2021.

The hybrid event will take place over two days from April 2nd – 3rd in Dublin, Ireland with an online attendance option.

The event will allow attendees to hear from specialists, academics, researchers and fellow people living with Vasculitis. This is an international networking event, helping attendees learn from each other and helping inform future care and research.

Registration for the event is free but mandatory.

More information and registration here: https://vasculitis2022.org/patient-conference/