The dates for the 2022 edition of the Innovation Bootcamp in Rare Diseases (IBRD2022), sponsored by Congress Care, have been […]
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Scientify Research, a Swedish company providing an open, curated and structured research funding database that focuses on aggregating information on […]
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In the framework of the French Presidency of the Council of the European Union (PFUE 2022), and under the high […]
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The Dravet Syndrome Foundation Spain (FSD), a non-profit organisation that promotes, encourages, and connects the world’s leading research centers for […]
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Euronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how […]
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The Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force on Drug Repurposing Guidebook to help developers (of […]
Read MoreThe Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC) is establishing a Task Force to characterize specific commonalities amongst a large group […]
Read MoreThe International Rare Diseases Research Consortium (IRDiRC) has published the results of its COVID-19 survey in the Rare Disease and Orphan Drugs Journal. […]
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Following a sustained campaign by rare disease patient advocacy organisations such as Rare Diseases International and with the support of […]
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Rare Disease Ghana Initiative (RDGI), in partnership with Rare Diseases International (RDI), is organising the first African Summit on Rare […]
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