The Share4Rare Project announces its 1st open call for patient-driven research projects targeted towards patient organisations and researchers in the field of rare diseases to apply for […]
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The European Expert Group on Orphan Drug Incentives (OD Expert Group), in collaboration with media partner EURACTIV, is organising a webinar on […]
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Based on evidence from a single-arm clinical trial, the European Medicines Agency (EMA) has recommended granting a marketing authorisation in the European […]
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Findacure, a UK-based nonprofit that works in the rare disease sector, is organising its annual Drug Repurposing for Rare Diseases […]
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NCATS along with NICHD and NINDS of the National Institutes of Health (NIH) are co-hosting a virtual NIH roundtable meeting […]
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Action for Rare Disease Empowerment (ARDEnt), a cross-sector coalition 30 UK-based experts in rare diseases, is organizing a webinar on […]
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The ProDGNE consortium, funded as part of the EJP RD’s Joint Transnational Call 2020 “Pre-Clinical Research to Develop Effective Therapies […]
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The Care-for-Rare Foundation at Dr. von Hauner Children’s Hospital, Munich has launched the Care-for-Rare Science Award 2021, a grant of […]
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Global Blood Therapeutics (GBT) is organizing a European multi-stakeholder roundtable event titled “Addressing Inequalities in Healthcare – Spotlight on Sickle […]
Read MoreWe recently worked with Mediaplanet UK on the 2019 Rare Diseases Campaign! Read the interview where Dr. Daria Julkowska (scientific […]
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