translation – EJP RD – European Joint Programme on Rare Diseases

New session of the MOOC “From Lab to Clinic: Translational Research for Rare Diseases” launching today!

Onakoy Tanguy — Mon, 17 Apr 2023 07:37:55 +0000

The new session of the MOOC “From Lab to Clinic: Translational Research for Rare Diseases” has been launched today. Learn the fascinating journey of translating research into treatments for Rare Diseases.
With expert guidance, explore drug discovery, clinical trials, regulatory approval, and challenges in this unique field. Gain insights from patients and experts, understand trial planning, design, and data sharing. By the end, you’ll have a comprehensive understanding of how evidence is built for safe and effective treatments.
Join now and make a difference in Rare Disease research!

Translating Research into Innovation: Lessons from 3 Case Studies in Health Partnerships

Onakoy Tanguy — Fri, 07 Apr 2023 08:01:32 +0000

The European Joint Programme on Rare Diseases, alongside TRANSCAN and the Innovative Health Initiative were selected by ERA LEARN to investigate how partnerships navigate the process of translating research activities into medical and health innovations for the benefit of patients, the European health systems and society.

The report is available here.

The aim of this policy brief consists of setting up a methodological approach to understanding translation of research into innovative outcomes. Studies on knowledge transfer and innovation processes often come across the idea of “the valley of death”, that is the critical phase where one step of the innovation process ends and a new one begins. In this perspective, one of the roles of partnerships is to bridge this valley of death by linking excellent research with technology and solution-minded business undertakings hence generating virtuous cycles of research and innovation.

EJP RD launches a new free MOOC “Introduction to translational research for Rare Diseases”

Onakoy Tanguy — Mon, 17 Oct 2022 08:00:00 +0000

We are glad to announce the launch of the new MOOC entitled “Introduction to translational research for Rare Diseases” will be available.

On this five-week course from the European Joint Programme on Rare Diseases, you’ll explore the therapeutic development process from the unique perspective of rare diseases.

You will follow the journey from discovery to approved treatment, learn how therapeutic targets and drug candidates are identified and validated, and examine the special regulatory frameworks.

This course is designed for researchers and students in medicine and health-related research fields, as well as healthcare professionals wanting to further their knowledge of translational research in rare diseases.

It is also suitable for biotech and start-up developers and Patients Advocacy Organisation representatives who want to increase their understanding of current practices in therapeutic developments for rare diseases.

More information here

EJP RD will launch a new free MOOC “Introduction to translational research for Rare Diseases”

Onakoy Tanguy — Mon, 10 Oct 2022 15:13:22 +0000

On October 17th, a new MOOC entitled “Introduction to translational research for Rare Diseases” will be available.

On this five-week course from the European Joint Programme on Rare Diseases, you’ll explore the therapeutic development process from the unique perspective of rare diseases.

You will follow the journey from discovery to approved treatment, learn how therapeutic targets and drug candidates are identified and validated, and examine the special regulatory frameworks.

More information here

TMEX – TRANSLATIONAL MEDICINE EXPLAINED 5 DAY WINTER SCHOOL 2023

Onakoy Tanguy — Mon, 10 Oct 2022 13:08:53 +0000

Registration is now open to the yearly 5-day course on “Translational Medicine Explained (TMex) ” on 13-17 February 2023 in Barcelona. The course is intended for PhD/MD students, postdocs and other young scientists who are involved in biomedical research and want to learn more about Translational Medicine.

The TMex (“Translational Medicine Explained)” Winter School consists of an introductory e learning (~12 hours student investment time) followed by a 5-day face-to-face workshop. The course is intended for PhD/MD students in the second half of their PhD and postdocs who are involved in biomedical research.

The full fee is of 650€. Special discounted fees of 475€ applies for EATRIS members and I2TRON students, and of 250€ for VHIR students and EUPATI fellows.

There are only 30 seats, so we recommend applying early (first come, first served). The registration will close when all seats have been filled. You will need to submit a biosketch and a motivation letter which will be reviewed by a selection committee.

More information here