Advances in diagnostic and therapeutic methods for lymph flow abnormalities

Intranodal MR lymphangiography is an imaging technique that allows for the central lymphatic vessels to be visualized. Lymph flow problems exist in many rare diseases, particularly in central conducting lymphatic anomaly and generalized lymphatic anomaly and its associated syndromes, such as Noonan. Some cases of primary lymph edema may also have abnormalities in the central lymph vessels. Consequently, the potential applications of this technique are of interest to several ERNs that cover diseases with a known or potential lymphatic component in their pathophysiology. In VASCERN, at least 2 working groups cover diseases that cause a problem in lymph flow. In addition, Noonan syndrome is in the area of expertise of ERN-ITHACA. Therefore, this workshop will offer the opportunity to further strength cross-ERN collaboration and establish new ones for the study of lymph flow problems.  
Concept: Face to face workshop with a small group (20-25) of European specialists with specific interest in developing and implementing MR lymphangiography.
It will consist of both presentations by experts in the field of lymph flow as well as hands-on sessions to train participants in interpreting MR lymphangiography. Suggestions for cross-ERN scientific studies will be discussed and start-ups will be encouraged during the event. 

Aim: to learn about lymph anatomy and physiology as well as diagnostic and therapeutic options available for rare disease patients with lymph flow disorders (lymphatic malformations, central lymph edema, Noonan syndrome and several others), with a specific attention to the innovative intranodal MR lymphangiography technique. This workshop will be an opportunity for participants to network and get acquainted with each other in order to collaborate in clinical and preclinical research studies involving this technique.

Participants of this workshop are medical specialists diagnosing or treating patients with lymph flow abnormalities. They need to be early adapters of innovative methods, dedicated to learn new methods and to collaborate in clinical and scientific projects in the (European) team. 

The workshop will consist of both presentations by experts in the field of lymph flow, as well as interactive sessions to train participants in performing and interpreting MR lymphangiography. The learning assessment will include discussions of case studies, observations, short written test/quiz, exit interview.  

Registration is open here until 31 May 2021.  

The training workshop is free of charge. 

Affiliated to an ERN-Full Member or Affiliated Partner institution. 

The organizer together with one member of the WP17 Scientific Evaluation Committee will select the most appropriate workshop participants based on their CVs and letter of interest.
All registered participants will be informed if they are selected to attend this training course before 30 June 2021.  

At the end of the training workshop a Certificate of Attendance will be sent to the participants who attended the entire workshop. 
No credits of Continuing Education in Medicine will be issued. 

Workshops will run in English. 

The workshop will now be held online due to the Covid-19 situation in the Netherlands.

If you have specific questions, please write to the workshop organizer:
Dr. Willemijn Klein 
Dept. of Radiology 
Radboud university medical center 
Nijmegen, the Netherlands 
Willemijn.klein@radboudumc.nl 

Questions related to organization of travelling hotel, dinner should be addressed to:
susan.smolders@radboudumc.nl

For general inquiries about the workshops in the ERN RD Support and Training Program please write to:
Sanja.hermanns@ejprd-project.eu
RareEndoERN@lumc.nl

Click here to see the programme.