13
Dec
2023Managing RD biological sample data in Biobanks: lessons learned from the EJP RD training workshops
General information This training workshop is the conclusive event of a series of capacity building programs on biobanking put forth by the European Joint Programme on Rare Diseases. The Rare disease (RD) field benefits from…
- 14:00 - 14:00 (14 December 2023)
- Milan, Italy
26
Oct
2023Training for patient representatives and advocates on leadership and communication skills
GENERAL INFORMATION26th – 27th October 2023.All applicants will receive an email on the status of their application (if accepted, in reserve list or not accepted) by end May 2023. INTRODUCTION AND OBJECTIVES The International Course…
- 09:00 - 18:00 (27 October 2023)
- Gdańsk, Poland
18
Oct
2023Quality assurance, variant interpretation and data management in the NGS diagnostics era
GENERAL INFORMATION The 5th International Training Course on “Quality assurance, variant interpretation and data management in the NGS diagnostics era”, will take place in Warsaw (Poland) on 18-20 October 2023. RELEVANCE, INTRODUCTION AND OBJECTIVES The…
- 11:00 - 13:30 (20 October 2023)
- Warsaw, Poland
25
Sep
2023International Summer School on Rare Disease Registries and FAIRification of data
REGISTRATION IS NOW OPEN HERE until 5 July 2023. This course is foreseen as a face-to-face training at Istituto Superiore di Sanità, Rome, viale Regina Elena 299. Registration is possible for: the first training module…
- 09:30 - 16:00 (29 September 2023)
- Rome, Italy