EJP RD – ERN Workshop: Psychological, molecular and administrative aspects of Hereditary breast and ovarian cancer genetic population screening (HBOC GPS)

Concept
After more than 20 years of Hereditary breast and ovarian cancer (HBOC) research in Latvia it has been confirmed that at least 5% of unselected breast cancers and 15% of unselected ovarian cancers cases are BRCA1/2 germline pathogenic variant carriers. However, in around 50% cases of HBOC specific family cancer history turned out to be absent and it is impossible to identify cancer free high-risk persons following only traditional diagnostic pathways. Accordingly, HBOC genetic population screening (GPS) is the only way to identify a considerable proportion of presymptomatic high risk individuals in order to reduce the proportion of advanced stage breast and ovarian cancers, mortality from this rare disease and the related public spendings. HBOC GPS should be considered as an innovative approach as it has not been introduced in any particular region of Europe so far and there are many psychological, molecular, digital and administrative aspects to be clarified.

Moreover, in 2023 Pauls Stradins Clinical University Hospital ERN GENTURIS team in collaboration with Riga Stradins University is going to launch the HBOC GPS feasibility pilot project to evaluate the optimal genetic testing strategy and psychometric evaluation of the participants.

Aim
To educate researchers and clinicians on Psychological, molecular and administration aspects of HBOC GPS

Clinical geneticists, laboratory geneticists, breast surgeons, gynecologists, oncopsychologists, public health specialists, medical oncologists, radiologists, radiotherapists, pathologists – employees or affiliated to an ERN-Full Member or affiliated Partner institution.

Lectures and discussion. Posters presenting some cases are also invited. They will be presented and discussed during the Workshop.

To register please fill the application form here until 24 March 2023

The training workshop is free of charge.  Travel and hotel expenses will be reimbursed for all selected (13) ERN participants. Lunch and dinner will be provided on site for all participants.

Affiliated to an ERN-Full Member or Affiliated Partner institution.

The organizer together with one member of the WP17 Scientific Evaluation Committee will select the most appropriate ERN participants. Priority will be given to authors of submitted posters. Registration for the workshop is on a first-come, first-served basis.

All registered participants will be informed if they are selected to attend this training course before 10 April 2023

At the end of the training workshop a Certificate of Attendance will be sent to the participants who attended the entire workshop and completed the survey. 
Credits of Continuing Education in Medicine might be issued – to be informed as soon as possible, if there is such a possibility. 

English.

Riga Stradins University Anatomy Museum – 9 Kronvalda Boulevard, Riga, Latvia
https://am.rsu.lv/en

If you have specific questions, please write to the workshop organizer:
[LĪga Hartpenga] (email: liga.hartpenga@rsu.lv )

Questions related to organization of travelling hotel, dinner should be addressed to:
[LĪga Hartpenga] (email: liga.hartpenga@rsu.lv )

For general inquiries about the workshops in the ERN RD Support and Training Program please write to:
Sanja.hermanns@ejprd-project.eu
c.n.van_beuzekom@lumc.nl 

See the programme here.