The World Duchenne Organization is pleased to announce that thanks to a collaborative initiative driven by their technical partners, FAIR […]
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The board game FAIRopoly developed by EJP RD illustrates the FAIRification steps followed by the ERNs registries to make their […]
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As part of the training activities proposed by EJP RD, the International Summer School on Rare Disease Registries and FAIRification of […]
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The BioData World Congress 2021 organised by Terrapinn is Europe’s largest congress covering big data in pharmaceutical development and healthcare aimed to […]
Read MoreOn October 6th, 2021, the European Commission (EC) opened a new funding call titled “Tackling diseases (Two Stage – 2022) […]
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Last March, the World Duchenne Organization in collaboration with Duchenne Data Foundation organized the second Meeting on FAIR Data Sharing […]
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All ERNs are tasked to set up patient registries that follow the FAIR Principles, as these ‘FAIR registries’ are essential […]
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As part of the training activities proposed by the EJP RD, the International Summer School on Rare Disease Registries and […]
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The FAIRplus project, which aims to develop tools and guidelines for making life science data FAIR (Findable, Accessible, Interoperable, Reusable) […]
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