EURORDIS-Rare Diseases Europe Announces New Chief Executive Officer

  EURORDIS-Rare Diseases Europe proudly announces the appointment of Virginie Bros-Facer, PhD, as its new Chief Executive Officer, starting March 2024.

Virginie brings an extensive professional background in rare diseases, scientific research, and patient advocacy, combined with personal insights from her niece’s experience with Congenital Disorders of Glycosylation.

EJP RD is proud to have collaborated with her at EJP RD, and excited to see her drive positive change in the rare disease community!

“I am privileged to re-join EURORDIS as CEO. My goal will be to build on both my professional experience and personal insights in rare disease research and patient advocacy to further EURORDIS’s mission, ensuring that the voices of all people living with a rare disease in Europe are heard and their needs are met,” Virginie stated.

Yann Le Cam, outgoing Chief Executive Officer of EURORDIS, expressed his full confidence in Bros-Facer’s leadership:

“I am thrilled to pass the baton to Virginie. Her unique blend of professional expertise and personal commitment to rare diseases makes her the ideal leader to guide EURORDIS into the future.”