Past RD Events
04
Jul
2023The 9th Rare Disease Summer School
Apply now to join the 9th Rare Disease Summer School organized by ITINERARE, a recently established University Research…
- 13:00 - 12:30 (7 July 2023)
- Kartause Ittingen, Warth (Canton Thurgau)
28
Jun
2023EJP RD - RD-Connect Genome-Phenome Analysis Platform (GPAP) Webinar
https://www.youtube.com/watch?v=-do0uF-giIg GENERAL INFORMATION Organiser – Centre Nacional d’Anàlisi Genòmica (CNAG-CRG, Barcelona, Spain) This is an introductory webinar to…
- 15:00 - 16:00
- Online
19
Jun
2023IHI Call Days - calls 4 & 5
To provide potential applicants of the Call 4 and Call 5 with the necessary information and assistance, The…
- 16:00 - 15:30 (29 June 2023)
- Online
07
Jun
2023Duchenne Care Conference 2023
World Duchenne is organising the Duchenne Care Conference 2023. This online conference is taking place on June 7…
- 15:00 - 18:00 (8 June 2023)
- Online
27
Apr
2023Implementation of co-funded European Partnerships
On 27 April 2023, ERA-LEARN is organizing an online event focused on the implementation of co-funded European Partnerships.…
- 09:30 - 13:00
- Online
23
Mar
20231st International CTNNB1 Syndrome Conference
A networking event, funded by EJP RD’s Networking Support Scheme, is being organised in Madrid, Spain on March…
- 09:00 - 12:30 (24 March 2023)
- Madrid, Spain
17
Mar
2023Transition of care for patients with rare liver disease throughout Europe: bridging the gap
A workshop organized by the ERN Rare Liver Transition of Care working group, funded by the Networking Support…
- 08:30 - 13:30 (18 March 2023)
- Ghent, Belgium
16
Mar
2023EJP RD Networking Symposium: Complex genetics of inherited arrhythmias
This symposium on inherited arrhythmias is funded by the EJP-RD Networking Support Scheme and will take place in…
- 08:30 - 13:00 (17 March 2023)
- Amsterdam, The Netherlands
07
Mar
2023Redo Surgery for Pull-Through in Hirschsprung's Disease: When and How
This webinar will be presented by Dr Marc Levitt (Chief, Division of Colorectal & Pelvic Reconstruction at the…
- 18:00 - 19:00
- Online
06
Mar
2023Third International Summit on Human Genome Editing
The Third International Summit on Human Genome Editing will take place as an in-person event at the Francis Crick Institute in…
- 09:30 - 18:00 (8 March 2023)
- London, United Kingdom
28
Feb
2023#SeeRare - the global Rare Disease Day event
Rare Disease International (RDI) has opened the event platform for #SeeRare – the global Rare Disease Day event…
- 14:00 - 15:00
- Online
22
Feb
2023Webinar: Primary Obstructive Megaureter (POM): Predictors of Success and Failure after Balloon Dilatation
ERN eUROGEN and ERNICA are organising a 1-hour webinar entitled “Primary Obstructive Megaureter (POM): Predictors of Success and…
- 18:00 - 19:00
- Online
13
Feb
2023TMEX – TRANSLATIONAL MEDICINE EXPLAINED 5 DAY WINTER SCHOOL 2023
Registration is now open to the yearly 5-day course on “Translational Medicine Explained (TMex) ” on 13-17 February…
- 12:00 - 15:00 (17 February 2023)
- Barcelona, Spain
08
Dec
2022European Union (EU) Health Summit – Rare Diseases Moonshot launch
Join us on 8th December for the European Health Summit that will take place in Brussels (Belgium) and online to find out more about…
- 09:00 - 18:25
- Brussels
28
Nov
2022CHIST-ERA ERA-NET Call ORD Information Webinar #2
Following the pre-announcement of the theme of the Call ORD, CHIST-ERA organises two information webinars to present the…
- 14:00 - 15:00
- Online
24
Oct
2022ERICA webinar: Practical guide on how to use the Catalogue of services and the IMT
In this webinar, that will take place on October 24th, Anton Ussi (Operations & Finance Director at EATRIS),…
- 13:00 - 14:00
- Online
11
Oct
2022Innovation Bootcamp in Rare Diseases 2022 (IBRD2022) Congress
Registration is now open for the Innovation Bootcamp in Rare Diseases (IBRD2022), sponsored by Congress Care. The event is…
- 09:00 - 19:00
- Brussels, Belgium
05
Oct
2022ANR ICPerMed Conference: Prelude to the Future of Medicine
The Agence Nationale de la Recherche is happy to announce their upcoming ICPerMed Conference, titled “Prelude to the…
- 09:00 - 17:00 (6 October 2022)
- Paris, France; and online
03
Oct
2022CHIST-ERA ERA-NET Call ORD Information Webinar #1
Following the pre-announcement of the theme of the Call ORD, CHIST-ERA organises two information webinars to present the…
- 14:00 - 16:00
- Online
14
Sep
2022ERN eUROGEN webinar: Proximal Hypospadias: Challenges in Surgical Management
ERN eUROGEN is happy to announce their upcoming webinar, titled “Proximal Hypospadias: Challenges in Surgical Management”. Surgical management…
- 18:00 - 19:00
- Online
14
Sep
2022International Scientific Symposium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders
The Ehlers-Danlos Society is organising the International Scientific Symposium on the Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD), a state-of-the-art…
- 08:00 - 18:00 (18 September 2022)
- Rome, Italy (with virtual attendance options)
07
Sep
2022WORLD DUCHENNE AWARENESS DAY 2022: Duchenne and Women
The World Duchenne Awareness Day, taking place each year on September 7th, is the official campaign to raise…
- 09:00 - 18:00
- Online
07
Jul
2022General Assembly of TEDDY Network
The General Assembly of TEDDY Network will be held online, within a hearing at the Council of Europe this July 7th from 9.30 to…
- 09:30 - 14:00
- Online
06
Jul
2022ERN eUROGEN webinar: Williams-Beuron Syndrome: A Focus on Long-Term Patient Care
ERN eUROGEN, ERN ITHACA and ERN ERKNet are organising a webinar on July, 6th 2022, at 18:00 CEST.…
- 18:00 - 19:15
- Online
01
Jul
2022Networking Support Scheme (NSS) event: Taking congenital portosystemic shunts (CPSS) to the next level
A funded networking event “Taking congenital portosystemic shunts (CPSS) to the next level – 2nd meeting of experts”…
- 08:30 - 16:30 (2 July 2022)
- Hybrid (Online and Geneva, Switzerland)
29
Jun
2022ERN eUROGEN webinar: Summer ’22 Update
ERN eUROGEN is organising a webinar on June, 29th 2022, at 18:00 CEST. This webinar will provide an overview…
- 18:00 - 19:00
- Online
27
Jun
202211th European Conference on Rare Diseases and Orphan Products (ECRD) 2022
The 11th European Conference on Rare Diseases and Orphan Products (ECRD) 2022 is being organized by EURORDIS and co-organized by Orphanet, with…
- 14:00 - 18:00 (1 July 2022)
- Online
20
Jun
2022Networking Support Scheme (NSS) event: European meeting on Phelan-McDermid syndrome
A funded networking event “European meeting on Phelan-McDermid syndrome” is being organised to discuss the guideline recommendations and to…
- 13:00 - 13:00 (22 June 2022)
- Groningen, Netherlands
17
Jun
2022Networking Support Scheme (NSS) event: 2nd International Congress on Biliary Atresia and Related Diseases (BARD)
A funded networking event “2nd International Congress on Biliary Atresia and Related Diseases (BARD)” is being organised to…
- 09:00 - 17:00 (18 June 2022)
- Bruges, Belgium
17
Jun
2022Networking Support Scheme (NSS) event: 3rd International Symposium on Wiskott Aldrich Syndrome (WAS2022)
A funded networking event “3rd International Symposium for Researchers and Clinicians on Wiskott Aldrich Syndrome (WAS2022)” is being…
- 09:00 - 18:00
- Munich, Germany
14
Jun
2022Innovative Health Initiative (IHI) Kick-off and brokerage event
The Innovative Health Initiative (IHI), a European Union public-private partnership funding health research and innovation, is organising a kick-off and brokerage event…
- 09:00 - 17:00
- Brussels, Belgium and Online
07
Jun
20221st World Congress on Rare Skin Diseases
Organized by the Rare Skin Diseases Network of the René Touraine Foundation, in association with ERN SKIN, the 1st World Congress…
- 09:00 - 18:00 (9 June 2022)
- Paris, France
16
May
2022NIH/FDA Virtual Workshop on Regulatory Fitness in Rare Disease Clinical Trials
The National Institutes of Health (NIH), National Center for Advancing Translational Sciences (NCATS) and the U.S. Food and Drug Administration…
- 15:00 - 18:00 (17 May 2022)
- Online
29
Apr
2022Networking Support Scheme (NSS) event: TREAT AIE European Conference on Autoimmune Encephalitis
A funded networking event “Treat AIE: First European networking conference to provide guidelines and improve treatment of Autoimmune…
- 14:00 - 13:00 (30 April 2022)
- Hybrid (Online and Florence, Italy)
20
Apr
2022Share4Rare webinar: Medical imaging in rare disease diagnosis
The Share4Rare Consortium is organising a webinar to discuss the potential of clinical imaging in rare disease diagnosis and research. The guest speaker…
- 17:00 - 18:00
- Online
20
Apr
2022Chan Zuckerberg Initiative Networking Expo for Patient-Partnered Collaborations (PPC) for Rare Disease
Earlier this year, the Chan Zuckerberg Initiative (CZI) launched two Requests for Applications (RFA) for grant opportunities that will fund collaborative teams bringing…
- 17:00 - 23:00 (21 April 2022)
- Online
07
Apr
2022Joint EMA/HMA/TEHDAS Data Quality Framework for Medicines workshop
The European Medicines Agency (EMA) is organising a joint EMA/HMA/TEHDAS Data Quality Framework for Medicines workshop as a virtual meeting on April 7th from 13.00 – 17.15…
- 13:00 - 17:15
- Online
06
Apr
2022Rare Conversations 2022 Webinar Episode 1: Game changing opportunities for the R&D community to address existing challenges in rare diseases
Rare Conversations invites you for the inaugural episode of the new Rare Conversations event series in 2022, aimed at powering the next…
- 14:00 - 15:15
- Online
02
Apr
2022Networking Support Scheme (NSS) event: International Vasculitis Patient Conference 2022
A funded networking event “International Vasculitis Patient Conference” is being organised as a satellite hybrid event to the 20th International ANCA Vasculitis Workshop…
- 14:00 - 17:45 (4 April 2022)
- Dublin, Ireland (and online)
01
Apr
2022Networking Support Scheme (NSS) event: European Dravet Syndrome Advanced Therapies Meeting (EDSAT)
A funded networking event titled “European Dravet Syndrome Advanced Therapies Meeting (EDSAT)” is being organised so that scientists can share…
- 08:30 - 15:40
- Madrid, Spain
31
Mar
2022Dravet Syndrome Foundation Scientific and Family Days 2022
The Dravet Syndrome Foundation Spain (FSD), a non-profit organisation that promotes, encourages, and connects the world’s leading research centers for Dravet…
- 08:30 - 19:00 (2 April 2022)
- Madrid, Spain
29
Mar
2022Webinar: IMI impact on SMEs in health data management and health IT sectors
The Innovative Health Initiative (IHI) is organising a series of live sessions on Innovative Medicines Initiatives (IMI) Impact, where key actors will explore…
- 14:00 - 15:30
- Online
28
Mar
202216th Genomics of Rare Disease Virtual Conference
The 16th Genomics of Rare Disease Conference is being organized a virtual event targeted towards professionals in genomics research and clinical care, and…
- 13:00 - 18:00 (29 March 2022)
- Online
07
Mar
2022Online events for 2023 Third International Summit on Human Genome Editing
The UK Royal Society, Academy of Medical Sciences, the US National Academies of Sciences and Medicine and UNESCO-The…
- 14:40 - 18:00 (9 March 2022)
- Online
01
Mar
20222nd International Conference on Rare Diseases: Greek Chapter
The 2nd International Conference on Rare Diseases is being organized by 95, Rare Alliance Greece. With the theme of “The Balancing Act…
- 09:00 - 17:30 (2 March 2022)
- Online
28
Feb
2022PFUE 2022 Scientific Symposium on Rare Diseases
In the framework of the French Presidency of the Council of the European Union (PFUE 2022), and under the…
- 09:00 - 12:30
- Hybrid: Online and at Ministry of Solidarity and Health (Conference Room Laroque), 14 Avenue Duquesne, 75007 Paris, France
28
Feb
2022Rare Disease Day 2022 at the World Expo Dubai
The NGO Committee for Rare Diseases, Ågrenska Foundation, Rare Diseases International (RDI), and EURORDIS-Rare Diseases Europe are jointly organising their 2022 Global Rare Disease Day…
- 07:30 - 13:30
- Sweden Pavilion (Sustainability District), World Expo, Dubai (United Arab Emirates)
17
Feb
2022EMA webinar on repurposing of authorised medicines pilot programme
In October 2021, the European Medicines Agency (EMA) and the Heads of Medicines Agencies (HMA) announced a pilot project to support the repurposing…
- 17:00 - 18:00
- Online
16
Feb
2022Information webinar on Chan Zuckerberg Initiative's Patient-Partnered RFAs with rare disease focus
The Chan Zuckerberg Initiative (CZI) is inviting applications from collaborative teams bringing together patient-led rare disease organisations and research teams for 4-year research…
- 18:00 - 19:00
- Online
15
Feb
2022Euronews virtual debate on innovation in rare diseases
Euronews has gathered a panel of experts, industry leaders and key players in Brussels to address the issue of how rare…
- 15:00 - 16:30
- Online
03
Feb
2022Networking Support Scheme (NSS) event on vascular liver diseases and associated complications
A funded networking event on vascular liver diseases and associated complications is being organised to give an update on current clinical…
- 12:00 - 15:15 (4 February 2022)
- Hybrid (Online and Medical University Vienna, Vienna, Austria)
20
Jan
2022European Paediatric Translational Research Infrastructure (EPTRI) webinar on medical device development
The European Paediatric Translational Research Infrastructure (EPTRI) is organising a webinar tailored to the development of medical devices (MD),…
- 11:00 - 13:00
- Online
18
Jan
2022EMA Webinar: Research in regulatory science – addressing the needs
The European Medicines Agency (EMA) is organising a virtual event on “Research in regulatory science – addressing the needs” to inform the public and…
- 10:00 - 12:00
- Online
14
Dec
2021EJP RD TRAINING WEBINAR: Does Randomization matter in RD clinical trials?
https://www.youtube.com/watch?v=7rmrN2Cs6C4 General information Rare Diseases (RD) is an area where national and international multidisciplinary collaborations are valuable to…
- 16:00 - 18:30
- Online
09
Dec
2021EJP RD and ERICA meeting on Domain specific Common Data Elements (DCDEs) Curation
EJP RD is co-organising a meeting, along with the European Rare Disease Research Coordination and Support Action consortium (ERICA) and…
- 16:00 - 17:00
- Online
01
Dec
2021First African Summit on Rare Diseases 2021
Rare Disease Ghana Initiative (RDGI), in partnership with Rare Diseases International (RDI), is organising the first African Summit on Rare…
- 16:00 - 13:00 (3 December 2021)
- Accra, Ghana (and Online)
29
Nov
2021EMA Webinar for SMEs and Academia on the Clinical Trial Regulation and the Clinical Trials Information System
The European Medicines Agency (EMA) is organising a webinar for small and medium enterprises (SMEs) and academia on the Clinical Trial Regulation…
- 09:00 - 13:30
- Online
23
Nov
2021VASCERN webinar: Diagnostic and Management Pathway for Severe and/or Rare Infantile Hemangiomas
VASCERN will hold a webinar on Tuesday November 23rd, 2021 from 5pm to 6pm (CET) entitled: Diagnostic and Management Pathway for…
- 17:00 - 18:00
- Online
18
Nov
20211st International Conference on Rare Diseases and Paediatric Research
The 1st International Conference on Rare Diseases and Paediatric Research is being organized by 95, Rare Alliance Greece together with Consorzio…
- 08:30 - 16:30 (19 November 2021)
- Online
15
Nov
2021World Orphan Drug Congress 2021: Strategy, advocacy and partnering for the orphan drug industry
The World Orphan Drug Congress organised by Terrapinn is a global, multi-stakeholder orphan drugs & rare diseases meeting that aims to provide…
- 10:30 - 17:00 (18 November 2021)
- Sitges (Barcelona), Spain
09
Nov
2021Rare Conversations – European Rare Disease Ecosystem: A Collaborative Path Forward
EJP RD is co-organising the “Rare Conversations – European Rare Disease Ecosystem: A Collaborative Path Forward” conference in cooperation with Alexion, EURORDIS, EUCOPE, and EuropaBio.…
- 14:00 - 18:00
- Online
08
Nov
2021Virtual Congress: Europe Biobank Week 2021
The European, Middle Eastern and African Society for Biopreservation and Biobanking (ESBB) and the European Research Infrastructure on Biobanking (BBMRI-ERIC) are jointly…
- 10:00 - 17:30 (10 November 2021)
- Online
08
Nov
2021EATRIS Winter School 2021: Translational Medicine Explained (TMex)
Interested in discovering the landscape of Translational Medicine? Learn from scientists in academia, industry and regulatory agencies and join…
- 09:00 - 18:00 (12 November 2021)
- Online
02
Nov
2021BioData World Congress 2021: Big Data and Digital Transformation in Pharmaceuticals and Healthcare
The BioData World Congress 2021 organised by Terrapinn is Europe’s largest congress covering big data in pharmaceutical development and healthcare aimed to…
- 08:30 - 16:00 (4 November 2021)
- Basel, Switzerland
27
Oct
2021Ubiquitous Pharmacogenomics (U-PGx) Personalized Medicine Symposium
The Golden Helix Foundation and the Leiden University Medical Center, both partners of the Ubiquitous Pharmacogenomics (U-PGx) project, are co-organising the Personalized Medicine Symposium…
- 09:00 - 18:00 (28 October 2021)
- Leiden, the Netherlands
20
Oct
2021EURORDIS Round Table of Companies workshop: The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines
EURORDIS Rare Diseases Europe is organising its 32nd Round Table of Companies (ERTC) workshop on the theme of “The impact of…
- 14:00 - 18:00 (21 October 2021)
- Online
18
Oct
2021National Organization for Rare Disorders (NORD) Rare Breakthrough Summit 2021
The National Organization for Rare Diseases (NORD) is organising its annual NORD Summit 2021, one of the largest multi-stakeholder events in rare…
- 15:00 - 23:00 (19 October 2021)
- Online
18
Oct
2021Genopole Summer School 2021: Bioinformatics and Biostatistical Tools in Medical Genomics
Genopole, the oldest and largest biocluster in France, is organising its Summer School 2021 on statistical methodologies and bioinformatics tools used in genomics and metagenomics in the context of…
- 14:00 - 18:00 (21 October 2021)
- Campus des Berges de Seine, 1 route de Beaulieu (D39), 77240 Seine-Port
18
Oct
2021Better Medicines for Children Conference: Global Paediatric Drug Development Challenges & Solutions
The European Forum for Good Clinical Practice (EFGCP) and the Drug Information Association (DIA) are organising the Better Medicines for Children Conference 2021 on…
- 11:30 - 18:00 (19 October 2021)
- Online
07
Oct
2021IMI impact on patient involvement event
The Innovative Medicines Initiative (IMI) is organising a series of online live sessions on IMI’s Impact, where key…
- 14:00 - 15:30
- Online
05
Oct
2021EFPIA Workshop: Accelerating Adoption of Complex Clinical Trials in Europe and Beyond
The European Federation of Pharmaceutical Industries and Associations (EFPIA) is hosting a multi-stakeholder virtual workshop titled “Accelerating Adoption of Complex Clinical Trials in Europe…
- 14:00 - 18:30 (6 October 2021)
- Online
05
Oct
2021Webinar on Living with SMA: Spotlight on the policy and access environment in Europe
Biogen has collaborated with SMA Europe to develop a tool called the Spinal Muscular Atrophy (SMA) Policy and Access Tracker, which offers…
- 11:00 - 12:30
- Online
29
Sep
2021RWE4Decisions Webinar: Delivering a Health Data Strategy for the European Reference Networks (ERNs)
RWE4Decisions, a multi-stakeholder initiative commissioned by the Belgian National Institute of Health, is organising a webinar entitled “Delivering…
- 16:00 - 17:30
- Online
27
Sep
2021ISPOR Webinar: Health Preference Research in the Context of Gene Therapy in Rare Diseases
The Professional Society for Health Economics and Outcomes Research (ISPOR) is organising a webinar entitled “Health Preference Research in the…
- 16:00 - 17:00
- Online
23
Sep
2021IMPC 10th Anniversary Conference: Mouse Genetics and Genomic Medicine
The International Mouse Phenotyping Consortium (IMPC) is organising a virtual conference titled “Mouse Genetics and Genomic Medicine” to celebrate the occasion…
- 14:00 - 23:00 (24 September 2021)
- Online
22
Sep
2021Webinar: Leaving the darkness – tackling rare bone diseases
Economist Events and Ipsen are organising a webinar entitled “Leaving the darkness: Tackling rare bone diseases” featuring the participation of clinical…
- 17:00 - 18:00
- Online
17
Sep
2021CeBIL Annual Symposium 2021 – Orphan Drug Innovation: Needs and Priorities
The Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) at the University of Copenhagen and the University of Cambridge’s Centre…
- 15:00 - 17:30
- Online
13
Sep
2021Covering Rare Diseases - National Press Foundation
The National Press Foundation is organising a two-day online workshop entitled “Covering Rare Diseases”. The workshop will take…
- 16:00 - 22:00 (14 September 2021)
- Online
07
Sep
2021EuropaBio Advanced Therapies webinar on EU case for equitable patient access to advanced therapies
EuropaBio continues its Advanced Therapies webinar series of events, interviews, and publications with a virtual discussion on avenues for enhancing the…
- 16:00 - 17:00
- Online
07
Sep
2021Online event on Adult Life & Duchenne
The World Duchenne Organization is organizing an online educational event on Adult Life & Duchenne. The free event on…
- 14:00 - 16:00
- Online
07
Sep
2021Virtual Round Table: Revision of the European Orphan & Paediatric Regulation and impact for the Nordic Rare Disease Community
The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is organising a multi-stakeholder round table discussion on the theme of the future of rare diseases…
- 12:00 - 13:30
- Online
21
Jul
2021RDCA-DAP Webinar: How the platform can help inform optimal trial design in progressive rare disease
As part of The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP) webinar series on the use of rare disease…
- 18:00 - 19:00
- Online
07
Jul
2021U.N. Political Forum 2021 High-Level Side Event: Addressing the challenges of persons living with a rare disease
The United Nations Political Forum on Sustainable Development (HLPF) is co-organising a High-Level Side Event titled “On the road towards COVID-19 recovery &…
- 14:00 - 15:30
- Online
06
Jul
2021ERN-Skin rare skin disease webinar: Combined cell and gene therapy for Epidermolysis Bullosa
The European Research Network for rare skin diseases (ERN-Skin) is launching a series of scientific webinars on rare skin diseases. Each 1-hour…
- 13:00 - 14:00
- Online
29
Jun
2021ERN-Skin rare skin disease webinar: Genetic discoveries in ichthyosis
The European Research Network for rare skin diseases (ERN-Skin) is launching a series of scientific webinars on rare skin diseases. Each 1-hour…
- 13:00 - 14:00
- Online
23
Jun
2021Scientific CDG Symposium 2021 (Virtual)
Registration are open until 30 April 2021 (deadline for Early Bird registration) Abstract Submission are open until 31…
- 11:00 - 18:30 (24 June 2021)
- Online
23
Jun
2021European Research and Innovation Days 2021
The European Commission (EC) is organising its annual flagship Research and Innovation event, titled “European Research and Innovation Days 2021”, bringing together policymakers, researchers, entrepreneurs and…
- 09:00 - 18:00 (24 June 2021)
- Online
16
Jun
2021RDCA-DAP Webinar: Value of Integrated Data and Analytics in Rare Disease Drug Development
As part of The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP) webinar series on the use of…
- 18:00 - 19:00
- Online
16
Jun
2021PedCRIN Final Event: Fostering International Paediatric Clinical Research
Paediatric Clinical Research Infrastructure Network (PedCRIN), a project of ECRIN, announces its PedCRIN Final Event on “Fostering International Paediatric Clinical Research” and invites…
- 09:30 - 13:00
- Online
15
Jun
2021Findacure’s Drug Repurposing for Rare Diseases Conference 2021
Findacure, a UK-based nonprofit that works in the rare disease sector, is organising its annual Drug Repurposing for Rare…
- 12:00 - 19:00 (16 June 2021)
- Online
15
Jun
2021EOSC Symposium 2021: Implementing an inclusive European Open Science Cloud
The European Open Science Cloud (EOSC) Secretariat is organising a symposium on the theme of “Implementing an inclusive European Open Science Cloud”, representing…
- 09:00 - 15:30 (18 June 2021)
- Online
11
Jun
2021Orphan Drug Expert Group Webinar: Addressing the unmet needs of rare disease patients
The European Expert Group on Orphan Drug Incentives (OD Expert Group), in collaboration with media partner EURACTIV, is organising a webinar on…
- 14:30 - 16:00
- Online
08
Jun
2021Share4Rare webinar: Setting the Path for Next Generation Data Sharing
The Share4Rare Consortium is organising a webinar to share the findings and outputs of four years of the Share4Rare project, setting the base…
- 15:00 - 18:00
- Online
03
Jun
2021ProDGNE Kick-Off Webinar
The ProDGNE consortium, funded as part of the EJP RD’s Joint Transnational Call 2020 “Pre-Clinical Research to Develop Effective Therapies for…
- 18:00 - 19:00
- Online
03
Jun
2021NIH Virtual Roundtable on Gene-Targeted Therapies: Early Diagnosis and Equitable Delivery
NCATS along with NICHD and NINDS of the National Institutes of Health (NIH) are co-hosting a virtual NIH roundtable meeting on the theme of Gene-Targeted Therapies: Early Diagnosis…
- 18:00 - 22:30 (17 June 2021)
- Online
01
Jun
2021World Duchenne Organization announces Duchenne Care Conference 2021
The World Duchenne Organization (WDO) is hosting an online Duchenne Care Conference intended for patients, family members, clinicians and others involved in the care of individuals affected by…
- 00:00 - 00:00 (4 June 2021)
- Online
31
May
2021Tech4Growth Health Workshop series: Building Impactful Partnerships Between Start-ups – Corporates – Academia
The Swiss Biotech Association, in collaboration with EFPL Innovation Park and Innosuisse, are organizing a series of Tech4Growth Health workshops as part of their “TFV –…
- 13:30 - 15:30 (2 July 2021)
- Online
26
May
2021European Conference on the Diffusion of Genomic Medicine: Health Economics & Policy
As part of Solve-RD, Solving the unsolved rare diseases, a European project H2020 on genetic research, the Health Economics Team…
- 15:30 - 19:45 (28 May 2021)
- Online
26
May
2021FAIRplus Project Webinar: Discovering the FAIR Cookbook
The FAIRplus project, which aims to develop tools and guidelines for making life science data FAIR (Findable, Accessible, Interoperable, Reusable) is organizing a webinar…
- 14:00 - 15:00
- Online
21
May
202116th International Congress on Neuromuscular Diseases
The Neuromuscular Disorders Applied Research Group of the World Federation of Neurology is organizing its 16th Annual Congress on Neuromuscular Diseases. The fully virtual…
- 12:00 - 18:00 (29 May 2021)
- Online