The ERICA & EJP RD Joint Conference was held on November 21st, 2023, in Amsterdam. This event aimed to unite […]
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As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed rare […]
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Call for abstracts MARFANS, the French patient association for Marfan and related syndromes, is pleased to announce its first scientific […]
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A funded networking event, the first Argonaute Syndrome Science & Family conference, has been organized to bring together patient families, researchers and […]
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The 2024 edition of the International Myotonic Dystrophy Consortium Meeting (IDMC-14) will be held in Nijmegen from 9-13 April 2024. Please note: deadline early bird […]
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Fondazione Gianni Benzi Onlus, in collaboration with Università degli Studi di Bari Aldo Moro, organises the XVI Foresight Training Course “Repurposing to cover […]
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The 12th edition of the European Conference on Rare Diseases and Orphan Products (ECRD), for which EJP RD is a partner, will take place […]
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The European Medicines Agency (EMA) is set to host an event, the “Multistakeholder Workshop on Patient Registries” on February 12-13, […]
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Procure4Health is organising a webinar for the 2nd Call for Twinnings practical session and Challenge identification on November 2nd, 2023.By […]
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The 5th International Conference on Rare Diseases (RARE2023) will be held in Budapest, Hungary on 30 November – 1 December […]
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